Controle Materno e Autocuidado de Crianças com Diabetes Tipo 1
DOI:
https://doi.org/10.20435/pssa.v14i1.1324Palavras-chave:
Diabetes Mellitus, saúde infantil, autocuidado, Práticas de criação infantil, Relações mãe-criançaResumo
Introdução: O autocuidado em crianças portadoras de doenças crônicas pode ser promovido ou prejudicado pelo comportamento parental. O objetivo deste estudo foi analisar as relações entre as práticas maternas de controle (suporte apropriado vs. controle psicológico) e o autocuidado em crianças com diabetes mellitus tipo 1 (DM1). Método: Participaram 23 mães de crianças portadoras de DM1, que responderam a uma entrevista semiestruturada sobre práticas de controle materno e ao Questionário da Rotina Pediátrica do Diabetes, que avaliou o autocuidado das crianças. Resultados: o suporte apropriado da mãe, especialmente quando expresso em explicações, encorajamento e afeto positivo, foi um preditor efetivo do autocuidado infantil. Discussão: o suporte apropriado favorece a conquista de autonomia por parte da criança, que se torna progressivamente mais capaz de cuidar da própria saúde. Conclusões: programas de intervenção para crianças portadoras de DM1 e suas famílias devem promover práticas de suporte apropriado nos pais.
Referências
American Association of Diabetes Educators. (2008). AADE Position Statement. The Diabetes Educator, 34(3), 444-449. https://doi.org/10.1177/0145721708316625
Asari, U., Udavat, H., Shah, K., Kalola, A., Vaja, M., & Patel, P. (2019). A study of risk factors, clinical profile and outcome of new and established type 1 diabetes mellitus presented with diabetic ketoacidosis in children less than 14 years in a tertiary care hospital. International Journal of Scientific Research, 12(8), 8-10. https://doi.org/10.36106/ijsr
Barber, B. K. (1996). Parental Psychological Control: Revisiting a Neglected Construct. Child Development, 67, 3296-3319.
Barber, B. K., Stolz, H. E., & Olsen, J. A. (2005). Parental support, psychological control, and behavioral control: Assessing relevance across time, culture, and method. Monographs of the Society for Research in Child Development, 70(4), 1-137. https://doi.org/10.1111/j.1540-5834.2005.00365.x
Butler, J. M., Skinner, M., Gelfand, D., Berg, C. A., & Wiebe, D. J. (2007). Maternal Parenting Style and Adjustment in Adolescents with Type I Diabetes. Journal of Pediatric Psychology, 32(10), 1227-1237. https://doi.org/10.1093/jpepsy/jsm065
Cicchetti, D. V., & Sparrow, S. A. (1981). Developing criteria for establishing interrater reliability of specific items: Applications to assessment of adaptive behavior. American Journal of Mental Deficiency, 86(2), 127-137.
Crandell, J. L., Sandelowski, M., Leeman, J., Havill, N. L., & Knafl, K. (2018). Parenting behaviors and the well-being of children with a chronic physical condition. Families, Systems, & Health, 36(1), 45-61. https://doi.org/10.1037/fsh0000305
Dashiff, C., Suzuki-Crumly, J., Kracke, B., Britton, L., & Moreland, E. (2013). Cystic fibrosis-related diabetes in older adolescents: Parental support and self-management. Journal for Specialists in Pediatric Nursing, 18(1), 42-53. https://doi.org/10.1111/jspn.12010
Driscoll, C. F. B., Ohanian, D. M., Ridosh, M. M., Stern, A., Wartman, E. C., Starnes, M., & Holmbeck, G. N. (2020). Pathways by which maternal factors are associated with youth spina bifida-related responsibility. Journal of Pediatric Psychology, 45(6), 610-621. https://doi.org/10.1093/jpepsy/jsaa020
Godfrey, C. M., Harrison, M. B., Lysaght, R., Lamb, M., Graham, I. D., & Oakley, P. (2011). Care of self – care by other – care of other: The meaning of self-care from research, practice, policy and industry perspectives. International Journal of Evidence-Based Health Care, 9(1), 3-24. https://doi.org/10.1111/j.1744-1609.2010.00196.x
Goethals, E. R., Oris, L., Soenens, B., Berg, C. A., Prikken, S., Broeck, N., . . . & Luyckx, K. (2017). Parenting and treatment adherence in type 1 diabetes throughout adolescence and emerging adulthood. Journal of Pediatric Psychology, 42(9), 922-932. https://doi.org/10.1093/jpepsy/jsx053
Greene, M. S., Mandleco, B., Roper, S. O., Marshall, E. S., & Dyches, T. (2010). Metabolic control, self-care behaviors, and parenting in adolescents with Type 1 Diabetes. The Diabetes Educator, 36(2), 326-336. https://doi.org/10.1177/0145721710361270
Grey, M. (2011). Coping skills training for youths with diabetes. Diabetes Spectrum, 24(2), 70-75. https://doi.org/10.2337/diaspect.24.2.70
Grusec, J. E., & Lytton, H. (1988). Social development: History, theory, and research. Springer-Verlag Publishing.
Guo, J., Whittemore, R., & He, G.‐P. (2011). The relationship between diabetes self‐management and metabolic control in youth with type 1 diabetes: An integrative review. Journal of Advanced Nursing, 67(11), 2294-2310. https://doi.org/10.1111/j.1365-2648.2011.05697.x
Hannonen, R., Aunola, K., Eklund, K., & Ahonen, T. (2019). Maternal parenting styles and glycemic control in children with type 1 diabetes. International Journal of Environmental Research and Public Health, 16, 1-9. https://doi.org/10.3390/ijerph16020214
Hoffman, M. L. (1975). Moral internalization, parental power, and the nature of parent-child interaction. Developmental Psychology, 11(2), 228-239. https://doi.org/10.1037/h0076463
International Diabetes Federation. (2019). IDF Diabetes Atlas (9a ed.). IDF. https://www.diabetesatlas.org/en/
Kelley, M. L., Sanchez-Hucles, J., & Walker, R. R. (1993). Correlates of disciplinary practices in working- to middle-class African-American mothers. Merrill-Palmer Quarterly, 39(2), 252-264.
Kim, M. A., Yi, J., Wilford, A., & Kim, S. H. (2019). Parenting Changes of Mothers of a Child with Cancer. Journal of Family Issues, 41(4). https://doi.org/10.1177/0192513x19881191
Kuppens, S., & Ceulemans, E. (2019). Parenting styles: A closer look at a well-known concept. Journal of Child and Family Studies, 28, 168-181. https://doi.org/10.1007/s10826-018-1242-x
Landers, S. E., Friedrich, E. A., Jawad, A. F., & Miller, V. A. (2016). Examining the interaction of parental involvement and parenting style in predicting adherence in youth with type 1 diabetes. Families, Systems, & Health, 34(1), 41-50. https://doi.org/10.1037/fsh0000183
Leal, D. T., Fialho, F. A., Dias, I. M. A. V., Nascimento, L do, & Arruda, W. C. (2010) Diabetes na infância e adolescência: O enfrentamento da doença no cotidiano da família. HU Revista, 35(4), 288-295. https://periodicos.ufjf.br/index.php/hurevista/article/view/831/285
Lee, J., Yu, H., & Choi, S. (2011). The influences of parental acceptance and parental control on school adjustment and academic achievement for South Korean children: The mediation role of self-regulation. Asia Pacific Education Review, 13(2), 227-237. https://doi.org/10.1007/s12564-011-9186-5
Lee, S., Chen, J., Tsai, M., Chang, S., & Wang, R. (2020). Modeling individual, parental and peer factors to glycemic control in adolescents with Type 1 Diabetes: A prospective study. Journal of Advanced Nursing, 76(5), 1162-1171. https://doi.org/10.1111/jan.14317
León-del-Barco, B., Mendo-Lázaro, S., Polo-del-Río, M. I., & López-Ramos, V. M. (2019). Parental Psychological Control and Emotional and Behavioral Disorders among Spanish Adolescents. International Journal of Environmental Research and Public Health, 16(3), 1-13. https://doi.org/10.3390/ijerph16030507
Li, D., Zhang, W., & Wang, Y. (2015). Parental behavioral control, psychological control and Chinese adolescents’ peer victimization: the mediating role of self-control. Journal of Child and Family Studies, 24, 628-637. https://doi.org/10.1007/s10826-013-9873-4
Malaquias, T. S. M., Marques, C. D. C, Faria, A. C. P., Pupulim, J. S. L., Maracon, S. S. & Higarashi, I. H. (2016). A criança e o adolescente com Diabetes Mellitus tipo 1: desdobrar do cuidado familiar. Cogitare Enfermagem, 21(1), 01-07. https://revistas.ufpr.br/cogitare/article/view/42010/27251
McShane, K., Hastings, P. D. (2009). The New Friends Vignettes: Measuring parental psychological control that confers risk for anxious adjustment in preschoolers. International Journal of Behavioral Development, 33, 481-495. https://doi.org/10.1177/0165025409103874
Murphy, C., & Miller, V. A. (2020). Concurrent and longitudinal associations among parenting style, responsibility, and adherence in youth with Cystic Fibrosis. Children's Health Care, 49(2), 153-67. https://doi.org/10.1080/02739615.2019.1616295
Neylon, O. M., O'Connell, M. A., Skinner, T. C., & Cameron, F. J. (2013). Demographic and personal factors associated with metabolic control and self-care in youth with type 1 diabetes: A systematic review. Diabetes/Metabolism Research and Reviews, 29(4), 257-272. https://doi.org/10.1002/dmrr.2392
Nunes, N. G. (2013). Ações educativas em Diabetes Mellitus tipo 1: Conhecendo sua prática a partir de produções bibliográficas [Trabalho de Conclusão, Universidade Federal do Rio Grande do Sul]. https://lume.ufrgs.br/handle/10183/115440
Palmer, D. L., Berg, C. A., Wiebe, D. J., Beveridge, R. M., Korbel, C. D., Upchurch, R., . . . & Donaldson, D. L. (2004). The role of autonomy and pubertal status in understanding age differences in maternal involvement in diabetes responsibility across adolescence. Journal of Pediatric Psychology, 29(1), 35-46. https://doi.org/10.1093/jpepsy/jsh005
Paixão, C. (2020). Controle parental em contextos afetados pelo adoecimento de crianças com fibrose cística [Tese de doutorado não publicada, Universidade Federal da Bahia, Salvador].
Piccinini, C. A., Frizzo, G. B., Alvarenga, P., Lopes, R. S., & Tudge, J. (2007). Práticas educativas de pais e mães de crianças aos 18 messes de idade. Psicologia: Teoria e Pesquisa, 23(4), 369-378. https://doi.org/10.1590/S0102-37722007000400002
Pierce, J., & Jordan, S. S. (2012). Development and evaluation of the Pediatric Diabetes Routines Questionnaire. Children’s Healthcare, 41(1), 56-77. https://doi.org/10.1080/02739615.2012.643290
Romm, K. F., Metzger, A. & Alvis, L. M. (2020). Parental psychological control and adolescent problematic outcomes: A multidimensional approach. Journal of Child and Family Studies, 29, 195-207. https://doi.org/10.1007/s10826-019-01545-y
Silva, A. C. S. (2018). Impacto da doença crônica infantil sobre a saúde mental de cuidadores primários e o desenvolvimento socioemocional da criança [dissertação de Mestrado, Universidade Federal da Bahia]. https://repositorio.ufba.br/ri/handle/ri/28435
Taylor, S. G., & Renpenning, K. (2011). Self-care science, nursing theory, and evidence-based practice [DX Reader version]. http://lghttp.48653.nexcesscdn.net/80223CF/springer-static/media/samplechapters/9780826107787/9780826107787_chapter.pdf
World Health Organization. (2018). Diabetes. https://www.who.int/news-room/fact-sheets/detail/diabetes
World Health Organization (2016). Global report on diabetes. https://apps.who.int/iris/bitstream/handle/10665/204871/9789241565257_eng.pdf;jsessionxml:id=446331044927037FFDE7DB13B00715EE
Wysocki, T., Nansel, T. R., Holmbeck, G. N., Chen, R., Laffel, L., Anderson, B. J., & Weissberg-Benchell, J. (2009). Collaborative involvement of primary and secondary caregivers: Associations with youths’ diabetes outcomes. Journal of Pediatric Psychology, 34(8), 869i881. https://doi.org/10.1093/jpepsy/jsn136
Publicado
Como Citar
Edição
Seção
Licença
Copyright (c) 2022 Revista Psicologia e Saúde
Este trabalho está licenciado sob uma licença Creative Commons Attribution 4.0 International License.
Os artigos publicados na Revista Psicologia e Saúde têm acesso aberto (Open Access) sob a licença Creative Commons Attribution, que permite uso, distribuição e reprodução em qualquer meio, sem restrições, desde que o trabalho original seja corretamente citado.
.jpg)
